Church News | Friday, 29 April 2016 |
Clare O’Grady came along to the Ladies Group meeting on 28th to give us an insight into Cystic Fibrosis. The first thing she told us was that she was not a doctor or nurse she was just an ordinary mum who had to face up to the devastating news of her baby girl having been diagnosed with cystic fibrosis. She said that cystic fibrosis was a complicated condition and that she couldn’t really talk to us about the illness as such, so had decided to tell us her own personal story.
It started when her baby daughter was born a little late but seemingly healthy. She breastfed well and gained weight. After a few weeks at home she took her little one to have some routine tests that all babies are given and was shocked to get a phone call from Great Ormond Street Hospital asking her to bring her baby in as there was a problem with one of her tests only to be given the news that her child had cystic fibrosis.
So the long haul began – which involved a very, very steep learning curve, with regards to the general care and medication that comes with this condition. Clare had to give up any thoughts of returning to work as she said that she would not have felt comfortable leaving her little girl in the care of someone else. Clare said that she is trying to treat her little girl now two and a half, as normal as possible, giving her as many ordinary opportunities as she can. Clare showed us many photos of her beautiful daughter and of the vast amounts of medication she has to administer to her 24-7.
I am sure I can speak for most of us ladies when I say that we were riveted to our seats listening to Clare’s story, she was a brilliant speaker and she answered all the questions that were put to her, only to learn that it was the first talk she had given on the subject.
Clare began her talk by saying that she was just an ordinary mum, personally, I think she was in no way an ordinary mum, but rather an extraordinary, caring and dedicated mother.